Kiniksa Pharmaceuticals Announces GRAMMY® Award-Winning Country Star, Carly Pearce, Joins the Life DisRPted™ Campaign, Adding to Voices Advocating for Awareness of Recurrent Pericarditis
Kiniksa Pharmaceuticals has partnered with GRAMMY Award-winning country star Carly Pearce for their Life DisRPted™ campaign, focusing on raising awareness for recurrent pericarditis. Pearce, who was diagnosed with the condition in 2024 after experiencing multiple flares over four years, joins NHL Hall-of-Famer Henrik Lundqvist in the campaign.
The initiative aims to educate patients and caregivers about this chronic autoinflammatory heart disease, which is often underdiagnosed. Through a video titled "The Power of Knowing" available on LifeDisRPted.com, Pearce shares her personal journey and emphasizes the importance of self-advocacy.
Recurrent pericarditis symptoms include:
- Chest pain
- Tiredness
- Shortness of breath
- Reduced exercise capacity
The campaign provides resources including a Doctor Discussion Guide to help patients better communicate with healthcare providers.
Kiniksa Pharmaceuticals ha collaborato con la star country vincitrice di un GRAMMY, Carly Pearce per la loro campagna Life DisRPted™, volta a sensibilizzare sul pericardite ricorrente. Pearce, diagnosticata con questa patologia nel 2024 dopo aver avuto diversi episodi acuti nell'arco di quattro anni, si unisce all'Hall of Famer della NHL Henrik Lundqvist nella campagna.
L'iniziativa mira a informare pazienti e caregiver su questa malattia cardiaca autoinfiammatoria cronica, spesso sottodiagnosticata. Attraverso un video intitolato "The Power of Knowing" disponibile su LifeDisRPted.com, Pearce racconta il suo percorso personale e sottolinea l'importanza dell'autodifesa.
I sintomi della pericardite ricorrente includono:
- Dolore al petto
- Affaticamento
- Respiro corto
- Ridotta capacità di esercizio
La campagna offre risorse come una Guida alla Discussione con il Medico per aiutare i pazienti a comunicare meglio con gli operatori sanitari.
Kiniksa Pharmaceuticals se ha asociado con la estrella country ganadora de un GRAMMY, Carly Pearce para su campaña Life DisRPted™, enfocada en crear conciencia sobre la pericarditis recurrente. Pearce, diagnosticada con esta condición en 2024 tras experimentar múltiples brotes durante cuatro años, se une al miembro del Salón de la Fama de la NHL Henrik Lundqvist en la campaña.
La iniciativa busca educar a pacientes y cuidadores sobre esta enfermedad cardíaca autoinflamatoria crónica, que a menudo está subdiagnosticada. A través de un video titulado "The Power of Knowing" disponible en LifeDisRPted.com, Pearce comparte su experiencia personal y destaca la importancia de la autodefensa.
Los síntomas de la pericarditis recurrente incluyen:
- Dolor en el pecho
- Cansancio
- Dificultad para respirar
- Capacidad reducida para hacer ejercicio
La campaña ofrece recursos, incluyendo una Guía para la Discusión con el Médico, para ayudar a los pacientes a comunicarse mejor con los profesionales de la salud.
Kiniksa Pharmaceuticals는 GRAMMY 수상 경력의 컨트리 스타 Carly Pearce와 협력하여 Life DisRPted™ 캠페인을 진행하며 재발성 심낭염에 대한 인식을 높이고 있습니다. Pearce는 4년 동안 여러 차례 증상이 악화된 후 2024년에 이 질환 진단을 받았으며, NHL 명예의 전당 헨릭 룬드크비스트와 함께 캠페인에 참여하고 있습니다.
이 캠페인은 만성 자가염증성 심장 질환인 재발성 심낭염에 대해 환자와 보호자에게 교육하는 것을 목표로 하며, 이 질환은 종종 과소진단됩니다. LifeDisRPted.com에서 볼 수 있는 "The Power of Knowing"라는 제목의 영상에서 Pearce는 자신의 개인적인 여정을 공유하며 자기 옹호의 중요성을 강조합니다.
재발성 심낭염의 증상은 다음과 같습니다:
- 가슴 통증
- 피로
- 호흡 곤란
- 운동 능력 감소
캠페인은 환자가 의료진과 더 잘 소통할 수 있도록 돕는 의사 상담 가이드 등 다양한 자료를 제공합니다.
Kiniksa Pharmaceuticals s'est associé à la star country lauréate d'un GRAMMY, Carly Pearce pour leur campagne Life DisRPted™, visant à sensibiliser sur la péricardite récurrente. Pearce, diagnostiquée en 2024 après avoir subi plusieurs poussées sur quatre ans, rejoint Henrik Lundqvist, membre du Temple de la renommée de la NHL, dans cette campagne.
Cette initiative a pour but d'informer les patients et leurs aidants sur cette maladie cardiaque auto-inflammatoire chronique, souvent sous-diagnostiquée. Dans une vidéo intitulée « The Power of Knowing », disponible sur LifeDisRPted.com, Pearce partage son parcours personnel et souligne l'importance de l'autodéfense.
Les symptômes de la péricardite récurrente comprennent :
- Douleur thoracique
- Fatigue
- Essoufflement
- Capacité d'exercice réduite
La campagne propose des ressources, notamment un guide de discussion avec le médecin, pour aider les patients à mieux communiquer avec les professionnels de santé.
Kiniksa Pharmaceuticals hat sich mit der GRAMMY-prämierten Country-Sängerin Carly Pearce für ihre Life DisRPted™-Kampagne zusammengeschlossen, die darauf abzielt, das Bewusstsein für wiederkehrende Perikarditis zu schärfen. Pearce, bei der 2024 nach mehreren Schüben über vier Jahre hinweg die Krankheit diagnostiziert wurde, schließt sich dem NHL Hall-of-Famer Henrik Lundqvist in der Kampagne an.
Die Initiative hat zum Ziel, Patienten und Betreuer über diese chronische autoinflammatorische Herzerkrankung aufzuklären, die oft unterdiagnostiziert wird. In einem Video mit dem Titel "The Power of Knowing", verfügbar auf LifeDisRPted.com, teilt Pearce ihre persönliche Geschichte und betont die Bedeutung der Selbstvertretung.
Symptome der wiederkehrenden Perikarditis sind:
- Brustschmerzen
- Müdigkeit
- Atemnot
- Verminderte Belastbarkeit
Die Kampagne stellt Ressourcen wie einen Gesprächsleitfaden für Ärzte bereit, um Patienten zu helfen, besser mit ihren Gesundheitsdienstleistern zu kommunizieren.
- Partnership with high-profile celebrity Carly Pearce expands marketing reach for recurrent pericarditis awareness campaign
- Strategic expansion of Life DisRPted campaign with second major celebrity (Henrik Lundqvist and now Carly Pearce) strengthens market presence
- Enhanced disease awareness campaign could drive increased diagnosis rates and potential treatment adoption
- No direct revenue or financial metrics provided
- Marketing campaign costs could increase operating expenses
- Continued need for disease awareness suggests potential market penetration challenges
– Pearce joins NHL Hall-of-Famer, Henrik Lundqvist, to educate patients and caregivers about the importance of accurate and early diagnosis of recurrent pericarditis, a chronic autoinflammatory disease of the heart that is often underdiagnosed or misdiagnosed –
LONDON, April 30, 2025 (GLOBE NEWSWIRE) -- Kiniksa Pharmaceuticals International, plc (Nasdaq: KNSA) (Kiniksa), a biopharmaceutical company developing and commercializing novel therapies for diseases with unmet need, with a focus on cardiovascular indications, has partnered with Country Music Association, Academy of Country Music, and GRAMMY Award-winning country star, Carly Pearce, to share her personal experience with recurrent pericarditis and encourage self-advocacy through Kiniksa’s Life DisRPted campaign. Pearce announced that she was diagnosed with recurrent pericarditis while on tour in 2024, after experiencing multiple flares over the previous four years.
“It wasn't until my fourth recurrent pericarditis flare — after seeing many doctors and receiving various diagnoses — that I was finally accurately diagnosed with recurrent pericarditis. During this time, it wasn’t only the symptoms that took a toll on me, but also the fear of the next flare. I remember thinking, ‘I'm afraid to get on the airplane,’ and ‘I'm afraid to get on the stage, because what if it happens again?’” said Pearce, Grand Ole Opry and Kentucky Music Hall of Fame member. “My hope is that through my work on the Life DisRPted campaign, I inspire others to advocate for themselves, share their symptoms, and not wait to talk to their doctors.”
“Greater awareness is the first step to earlier diagnosis and intervention, which is critical for protecting patients from unnecessary suffering and future recurrent pericarditis flares,” said Sanj K. Patel, Chairman and Chief Executive Officer of Kiniksa. “Carly understands the physical and emotional toll of this disease firsthand, and we are honored to help her share her powerful story. By providing information on recognizing symptoms, understanding the disease, and accessing appropriate care, our goal is to empower patients with the tools to take control back from recurrent pericarditis.”
Patients experiencing recurrent pericarditis flares, characterized by chest pain but often also tiredness, shortness of breath, or inability to exercise as much as normal, suffer wide-ranging effects on quality of life, physical activity, and overall well-being. Recurrent pericarditis can be challenging to diagnose since many different conditions can cause similar symptoms, and recurrent pericarditis may not be the obvious diagnosis.
First launched in October 2024 featuring Henrik Lundqvist, former National Hockey League goaltender and Hockey Hall-of-Fame inductee, Life DisRPted is a national campaign focused on raising awareness of recurrent pericarditis, its impact on quality of life, and the critical importance of early diagnosis. Through Life DisRPted, Pearce is sharing her personal journey with recurrent pericarditis in a video titled “The Power of Knowing,” helping to shed light on the realities of living with the disease and the importance of self-advocacy. The video is available on LifeDisRPted.com, which also features a downloadable Doctor Discussion Guide to help patients prepare for conversations with their healthcare providers.
To hear Carly Pearce’s story, visit LifeDisRPtedCarly.com
About Recurrent Pericarditis
Recurrent pericarditis is a painful and debilitating chronic autoinflammatory cardiovascular disease marked by inflammation of the pericardium and is often associated with changes in electrical conduction and sometimes buildup of fluid around the heart, called pericardial effusion. Recurrent pericarditis symptoms have an impact on quality of life, limit physical activities, and lead to frequent emergency department visits and hospitalizations. Data show that approximately 40,000 patients in the U.S. seek and receive treatment for recurrent pericarditis each year. Of that group, approximately 14,000 patients experience two or more recurrences due to persistent underlying disease or inadequate response to conventional therapies, such as nonsteroidal anti-inflammatory drugs (NSAIDs), colchicine, and corticosteroids.
About Kiniksa
Kiniksa is a biopharmaceutical company dedicated to improving the lives of patients suffering from debilitating diseases by discovering, acquiring, developing, and commercializing novel therapies for diseases with unmet need, with a focus on cardiovascular indications. Kiniksa’s portfolio of assets is based on strong biologic rationale or validated mechanisms and offers the potential for differentiation. For more information, please visit www.kiniksa.com.
About Carly Pearce
Fiercely rooted in the classics, GRAMMY Award-winning singer-songwriter Carly Pearce lit a fire with her debut album Every Little Thing and the PLATINUM-certified history-making title track, and she hasn’t slowed down since. With the praised release of her highly anticipated fourth album, hummingbird (June 7, Big Machine Records), Pearce continues to resonate with her honest lyrics and timeless musicality. The critically acclaimed album includes the blazing “truck on fire” as well as lead single “we don’t fight anymore” (featuring Chris Stapleton) which earned Pearce her second GRAMMY nomination for Best Country Duo/Group Performance and fifth Top 5 Country Radio hit. On March 14th, Pearce released hummingbird: no rain, no flowers, a deluxe edition of the album with five new tracks and is currently performing the new music on her headlining hummingbird world tour. Previously, her critically acclaimed and commercially lauded third studio album 29 produced Country Radio chart toppers including “Never Wanted to Be That Girl” with Ashley McBryde which gave Pearce her second consecutive ACM Music Event of the Year in 2022 and marked the third duet between two solo women to top Billboard’s Country Airplay chart. The song also took home the 2022 CMA Musical Event of the Year and won a GRAMMY Award for Best Country Duo/Group Performance, marking Pearce’s first, and making history as the first female pairing to win in the category. In addition, Pearce’s 3x PLATINUM-certified “I Hope You’re Happy Now” with Lee Brice won both the 2020 CMA Awards Musical Event and 2021 ACM Awards Music Event, plus ACM Single of the Year. Both a Grand Ole Opry and Kentucky Music Hall of Fame member, Pearce recently made her 100th performance at the Grand Ole Opry. For more information, visit CarlyPearce.com.
Every Second Counts! ®
Kiniksa Investor Contact
Jonathan Kirshenbaum
(781) 829-3949
jkirshenbaum@kiniksa.com
Kiniksa Media Contact
Tyler Gagnon
(781) 431-9100
tgagnon@kiniksa.com
Carly Pearce Media Contacts
Erica Gerard
erica.gerard@fullcov.com
Avery Robinson
avery.robinson@fullcov.com
A video accompanying this announcement is available at https://www.globenewswire.com/NewsRoom/AttachmentNg/6d3f6284-9736-4ce2-91e2-2c3934f93925
FAQ
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